Beyond Bioethics

List of Illustrations Foreword by Troy Duster Acknowledgments Note to Readers Introduction Osagie K. Obasogie and Marcy Darnovsky Part I. The Biopolitical Critique of Bioethics: Historical Context 1. The Biological Inferiority of the Undeserving Poor 2. Making Better Babies: Public Health and Race Betterment in Indiana, 1920-1935 3. Eugenics and the Nazis: The California Connection 4. Why the Nazis Studied American Race Law for Inspiration 5. Constructing Normalcy: The Bell Curve, the Novel, and the Invention of the Disabled Body in the Nineteenth Century 6. The Eugenics Legacy of the Nobelist Who Fathered IVF Part II. Bioethics and its Discontents 7. A Sociological Account of the Growth of Principlism 8. Why a Feminist Approach to Bioethics? 9. Disability Rights Approach toward Bioethics? 10. Differences from Somewhere: The Normativity of Whiteness in Bioethics in the United States 11. Bioethical Silence and Black Lives 12. The Ethicists Part II. Emerging Biotechnologies, Extreme Ideologies: The Recent Past and Near Future 13. The Genome as Commons 14. Yuppie Eugenics 15. Brave New Genome 16. Can We Cure Genetic Diseases without Slipping into Eugenics? 17. Cyborg Soothsayers of the High-Tech Hogwash Emporia: In Amsterdam with the Singularity Part IV. Markets, Property, and The Body 18. Flacking for Big Pharma 19. Your Body, Their Property 20. Where Babies Come From: Supply and Demand in an Infant Marketplace 21. Dear Facebook, Please Don't Tell Women to Lean In to Egg Freezing 22. The Miracle Woman Part V. Patients As Consumers in The Gene Age 23. What Is Your DNA Worth? 24. Should Patients Understand That They Are Research Subjects? 25. Direct-to-Consumer Genetic Tests Should Come with a Health Warning 26. Genetic Testing for All Women? Not a Solution to the Breast Cancer Epidemic 27. Welcome, Freshmen: DNA Swabs, Please 28. Me Medicine 29. Public Health in the Precision-Medicine Era Part VI. Seeking Humanity in Human Subjects Research 30. Medical Exploitation: Inmates Must Not Become Guinea Pigs Again 31. The Body Hunters 32. Guinea-Pigging 33. Human Enhancement and Experimental Research in the Military 34. Non-Consenting Adults Part VII. Baby-Making in The Biotech Age 35. Generation I.V.F.: Making a Baby in the Lab-10 Things I Wish Someone Had Told Me 36. Queering the Fertility Clinic 37. Reproductive Tourism: Equality Concerns in the Global Market for Fertility Services 38. Make Me a Baby as Fast as You Can 39. Let's Get Rid of the Secrecy in Donor-Conceived Families Part VIII. Selecting Traits, Selecting Children 40. Disability Equality and Prenatal Testing: Contradictory or Compatible? 41. The Bleak New World of Prenatal Genetics 42. Have New Prenatal Tests Been Dangerously Oversold? 43. Sex Selection and the Abortion Trap 44. A Baby, Please: Blond, Freckles-Hold the Colic Part IX. Reinventing Race in The Gene Age 45. Straw Men and Their Followers: The Return of Biological Race 46. The Problem with Race-Based Medicine 47. Race in a Bottle 48. The Science and Business of Genetic Ancestry Testing 49. All That Glitters Isn't Gold 50. High-Tech, High-Risk Forensics Part X. Biopolitics and The Future 51. Die, Selfish Gene, Die 52. Toward Race Impact Assessments 53. Human Genetic Engineering Demands More Than a Moratorium 54. "Moral Meanings of an Altogether Different Kind": Progressive Politics in the Biotech Age Afterword by Patricia J. Williams List of Contributors Index