Debating Human Genetics

Contemporary Issues in Public Policy and Ethics

By: Alexandra Plows

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Hardcover | 16 July 2010 | Edition Number 1

At a Glance

Hardcover
248 Pages

Dimensions(cm)
23.39 x 15.6 x 1.6

Hardcover

RRP $284.00

$200.95

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Debating Human Genetics is based on ethnographic research focusing primarily on the UK publics who are debating and engaging with human genetics, and related bio and techno-science. Drawing on recent interviews and data, collated in a range of public settings, it provides a unique overview of multiple publics as they 'frame' the stake of the debates in this emerging, complex and controversial arena.

The book outlines key sites and applications of human genetics that have sparked public interest, such as biobanks, stem cells, genetic screening and genomics. It also addresses the 'scientific contoversies' that have made considerable impact in the public sphere - the UK police DNA database, gene patenting, 'saviour siblings', and human cloning. By grounding the concepts and issues of human genetics in the real life narratives and actions of patient groups, genetic watchdogs, scientists, policy makers, and many other public groups, the book exemplifies how human genetics is a site where public knowledge and value claims converge and collide, and identifies the emergence of 'hybrid publics' who are engaging with this hybrid science.

Industry Reviews

'This book on human genetics and its multiple publics is a timely reminder that there are many different publics who engage with policy issues in different ways. It is an important contribution to our understanding of the complexities of "engaging publics" and public engagement. Its coverage of a broad terrain, from human embryonic stem cell research to biobanks and national DNA forensic databases affords a rich assortment of narratives on how competing visions of the good life are framed differently in the different arenasa of genetics. It is a useful contribution to our broader understanding of biosocietal life.' - Edna Einsiedel, Professor of Communication Studies at the University of Calgary, Canada

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