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Ethical Issues in Governing Biobanks : Global Perspectives - Nikola Biller-Andorno

Ethical Issues in Governing Biobanks

Global Perspectives

By: Nikola Biller-Andorno, Alexander M. Capron, Bernice Elger (Editor)

Hardcover | 17 December 2008

At a Glance

Hardcover

$375.85

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Population genomics research drawing on genetic databases has expanded rapidly in recent years. In some cases, this information has been combined with details on individuals' health, lifestyle or genealogy. Protecting the data available from such databases has consequently emerged as a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to discuss the development of an international regulatory framework to provide practical guidance.In this volume, the Geneva International Academic Network (GIAN), the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, and the Institute of Biomedical Ethics of Geneva University have joined together to study the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. The work includes a comprehensive review of the scientific literature along with a comparative analysis of existing normative frameworks. Unresolved and controversial issues are taken up in empirical studies and the results combined with analysis to produce draft recommendations towards an international framework.The book will be a valuable resource for researchers and practitioners working in the development, maintenance and regulation of biobanks.
Industry Reviews
'This volume is a "must-read" for anyone interested in biobanks, bringing together both theoretical perspectives and empirical data to shed clear light on the sometimes confusing issues of terminology, and identifying where consensus exists regarding ethics and regulation in this important area of scientific development.' Ruth Chadwick, Cardiff University, UK 'Ethical Issues in Governing Biobanks provides valuable evidence of widespread academic concern about ethical issues associated with biobanks.' Journal of the American Medical Association '[This] book provides a comprehensive overview of unresolved ethical disputes in the literature and of conflicting national and international guidelines. Even more useful, much of the book is based on an international qualitative study of the ethical opinions of bioethicists, biobank managers, medical researchers and clinicians.' Monash Bioethics Review 'The strength of the book is the rich and detailed exploration of the moral reasoning concerning a large number of controversial issues surrounding the development of new biobanks and the maintenance of existing biobanks... The authors have managed to present their material in a very lively, compelling fashion... I strongly recommend this book to anyone who is interested in the topic of biobanks and who would like to understand more of the complicated discussions concerning them.' Genomics, Society and Policy

You Can Find This Book In

Non-FictionMedicineMedicine in GeneralMedical ProfessionMedical Ethics & Professional ConductSociety & CultureEthical Issues & DebatesEthical Issues of Scientific & Technological DevelopmentsLawJurisprudence & General IssuesScienceBiology, Life Sciences
Life Sciences in GeneralGenetics excluding Medical

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