Myotonice Dystophy : The Facts - Peter Harper

Myotonice Dystophy

The Facts

By: Peter Harper

Paperback | 23 June 2009 | Edition Number 2

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Myotonic dystrophy is part of the group of muscular dystrophies. It is the commonest inherited muscular dystrophy and has a profound effect on individuals who are diagnosed with the disease and their families. It is present for many decades of a patient's life but, unlike the other dystrophies, it also affects the organs in the body, making this a very distinctive disorder, and a very troubling one for those close to it.

When the first edition of Myotonic Dystropy: The Facts published in 2002, it was widely appreciated by families, support groups, professionals, and reviewers for its simple and clear approach to key practical questions. This new edition retains the same successful structure, but now includes new material on the recognition of the distinct "type 2 myotonic dystrophy," which had only just been identified at the time of the first edition. Further explanation of the advances in basic understanding of myotonic dystrophy, and additional coverage of the new approaches to therapy and management of the condition are also included, as well as comprehensive discussion of the recent on-going worlwide research.

New to this edition are "Key Facts" at the beginning of each chapter, "Frequently Asked Questions" boxes, and up-to-date contact details for worldwide myotonic dystrophy support groups.

Industry Reviews
From the previous edition `You couldn't ask for a better book about this complex disease...For anyone with this condition in the family, it's a must read at a bargain price.' Quest: the Journal of the Muscular Dystrophy Association, Vol 9, No 5 `. . . the first book to be published for lay people who have the condition. It is written clearly for people with no medical expertise.' Yours `This book is a gem that patients with this condition will want to read and own.' Doody's Journal

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