The Governance of Genetic Information

Who Decides?

By: TBD

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Hardcover | 3 September 2009

At a Glance

Hardcover
248 Pages

Dimensions(cm)
22.86 x 15.24 x 1.6

Hardcover

$148.63

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This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.

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Notes on contributors	p. ix
Preface	p. xi
Introduction	p. 1
Problematising governance of genetic information	p. 13
The medium and the message: tissue samples, genetic information and data protection legislation	p. 15
Me, myself, I - against narcissism in the governance of genetic information	p. 37
Decisions, consent and expectations of the individual	p. 51
Ethical frameworks of governance	p. 73
Constructing communal models of governance: collectives of individuals or distinct ethical loci?	p. 75
Rights, responsibility and stewardship: beyond consent	p. 99
Who decides what? Relational ethics, genetics and well-being	p. 126
Redesigning governance	p. 149
Involving publics in biobank governance: moving beyond existing approaches	p. 151
Genetic information and public opinion	p. 178
Harmonisation and standardisation in ethics and governance: conceptual and practical challenges	p. 201
Bibliography	p. 214
Index	p. 229
Table of Contents provided by Ingram. All Rights Reserved.

The Governance of Genetic Information

Who Decides?

At a Glance

Hardcover

Shipping

How to return your order

Defective items

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